Thursday, July 28, 2011

I have no shame!

I have almost fully moved into my new apartment, and it’s lovely. It’s located in a great place, and my roommates are wonderful! Getting things arranged is a bit of a struggle, but I will get there… bit by bit, I will arrange my books and clothes; they take up two thirds of my room. Alas, I also need to find a place to store my FIVE suitcases. With them, I really just have a bed and a desk, not a room! But I will get there…

It was a productive day, indeed. With the help of a friend, I was able to clean my old apartment to a great degree. It’s much cleaner. All I have to do is move a few things and clean the refrigerator. I cleaned the bathroom today, and my friend vacuumed the place, so it’s simply a matter of moving a few kitchen items, my clothes, a suit case, and cleaning the refrigerator. It shouldn’t be too bad. Hopefully, I’d be able to get it done tomorrow and return my keys.

After a very healthy lunch in a much cooler place (I was really suffocating! The heat kills me!!), we headed to Bromen Hospital to collect a CD of the two MRI’s I had done there to be compared with the MRI that was done last week. At Bromen, the very friendly man near the entrance asked me with a smile if I needed a wheelchair. I suppose I did, so I succumbed. I was pushed in a wheelchair all the way to radiology. I felt a little scared that this was becoming a habit. Ah, but it helped, and as Joy said, maybe using a wheelchair will be liberating. It’s time to surrender… I guess I have too much pride. And I’m scared… I really am. All this is planned, I think. Not in a bad way, of course. It’s comforting to know that someone has all the answers. Amen.

It couldn’t be an accident that I started reading MAUS by Art Spiegelman. Going through the most macabre details of the Holocaust, I can view my body and its imperfections with new eyes and be grateful for the little I have: I’m not starving, and I still can do a few things I enjoy. I just took a cold shower, and I’m grateful for every drop of water. What was harder today, was compromising heavily inculcated cultural baggage. My legs are so thin, and my jeans were falling down revealing a lot more than I’m used to. When greater things are at stake, how can I worry about such petty things? They might not look all that petty to the outside world, but to me, when I compare my challenges, this is nothing. I die a thousand deaths because of the heat, and some can’t even begin to understand. They probably think I’m being lazy or dramatic. It’s so amazingly revealing, I think, to be able to see the world through someone else’s eyes. I just sympathize with those who are unable to. They probably don’t mean badly, anyway. Miracles happen when one is able to remove oneself from the equation of life.

The hardest thing for me today, was to realize that MS was affecting my memory and cognition quite badly. When Gary took me to OSF, I said it was not the right building. It was a different color, I said. I was extremely confident, too. So we drove away, and after much calling and verification, we went back to the same place. It was the right place and it was always that color (I have been there at least twenty five times). I felt extremely inadequate and unintelligent. Coming back, I came out of the main entrance and thought it was not where I came into the building from, so I walked back in. Luckily, I saw the car pull up. Ah, what else is in store for me? I will live for the moment, though, and be thankful for the fan that keeps me cool, my sunglasses, my delicious cologne, my tricycle, and my genuine friends.

No one said my life was going to be a walk in the park.olocaustHH

Tuesday, July 19, 2011

The world looks different… from a wheelchair







I love Shakespeare. Let me re-phrase: I once LIVED for Shakespeare. The wisdom, the poetry, the visual opulence when enacted on stage. When I was in high school, I won some endowed prize for Shakespeare determined by an exam on the Bard and his work. My name appears on the wall of the college auditorium. I considered that an honor, especially because only so many names can be displayed on the wall: there were eight thousand students (all boys) in the school then and it was built in 1835. I memorized Shakespeare’s Sonnet 18 when I was 13 (Shall I compare thee…), and I still remember word for word. I also remember Viji (my first lit teacher) with awe and fondness unparalleled. He’s no more… gone to “dusty death”… Life is indeed a “poor player that struts and frets his hour upon the stage and then is heard no more. ‘Tis a tale told by an idiot. Full of sound and fury, signifying nothing.”

So many years later, I’m a poor grad student in Normal/Bloomington. I’m poor, and I like it that way. When pastor Knapp invited me to see Complete Works of Shakespeare (abridged) at the Shakespeare festival, I was ecstatic. It was not just the play, but dinner as well. I had dinner with some wonderful people whose goodness touched me very deeply. It’s easier being with people who recognize their minuteness in the greater scheme of things, a truth I’m becoming more aware of at the passing of each day. The resultant empathy towards the fellow human being is “a thing of beauty”, “a joy forever.” As I was recently advised by the doctor that I need to have protein in my system, I eat fish now. Sandy’s salmon dish was a rare gastronomical delight! So soft… so rich… and I loved the crunchy onions on top. The fragrance made my taste-buds scream. Such good food, such good people… Bob, Sandy, Misaka, Harry, Marla. It’s been only a couple of days, and I miss them all dearly. It’s easier, I think, for me to miss people. Another lesson MS has taught me: everything is so transitory, so short-lived. I have Misaka’s smile imprinted in my mind. I rely on it when the going gets tough. I will remember the joy and selfless love with which she offered us many different flavors of ice cream. The ice cream was to die for… Misaka’s smile, a thousand times better. After an amazingly fulfilling dinner, we headed to the Ewing Manor for Complete Works of Shakespeare (abridged). Bob (Pastor Knapp) told me that they brought their wheelchair if I needed it, but I was too mighty. Maybe I was scared that it might spell an end for me, so I decided to walk. Walking to the theater was not too hard, even though coming back was a different story.

The play was an absolute scream!! Such energy and such brilliant comic timing! Wow! This was the first time I had seen Complete Works of Shakespeare (abridged). I am so glad I could see it; the raving reviews I had read about the play made perfect sense. What a HILARIOUS work! The next day, when I thanked pastor Knapp for such a wonderful experience, he emailed me back, saying that he’d let me know if they could get tickets for Romeo and Juliet and The Winter’s Tale as well. The very thought made me smile from ear to ear, and when Pastor Knapp emailed me again to say that they have been able to get tickets for me for both Romeo and Juliet and The Winter’s Tale, I was beside myself. During the two following evenings, I met some more wonderful people (Jim and Helen) and got the chance to experience some wonderful professional theater.

Romeo and Juliet was amazingly well directed and acted. They were professional actors, so they knew exactly what they were doing. The play started with the entire cast delivering the opening lines against a backdrop of the feud between the Capulets and the Montagues. Beautifully done. The very opening of the play sent chills down my spine. I’m not sure whether it was the sheer brilliance of the cast or my own memories of the play that drew such a passionate response from me. I was moved to tears at least five times during the performance. The memories are many: I studied the play for my G.C.E. A/L exam, I acted in the play in 1995, I have seen countless performances, I acted a monologue for a college acting final… They all came back. I enjoyed every single actor; I thought Romeo, Benvolio, Mercutio, and the nurse were phenomenal. At the curtain call, I wanted to stand up to applaud, but my limbs were very week, so I simply clapped as loud as my feeble hands allowed.  

The Winter’s Tale was probably my favorite out of the three. The absolute perfection of the leads as well as the supporting cast was simply mind-blowing. The seats we had were so close to the actors that I could easily detect their physical, mental, and emotional investment in the roles they were playing. The actress who played the nurse played Paulina this time. Her versatility as an actress was evident in leaps and bounds. What a drastic and well handled transformation!

After a physically challenging first night of walking back to the car after the performance, I decided to use the wheelchair the second and third nights. It was the first time I had been in a wheelchair. The world looked a lot different, I thought. It looked bigger and insurmountable. I felt little, weak, and insignificant. I was sad to be a dependent, to depend on the kindness of people around me. And then I realized that I would do the same for my fellow man. I wouldn’t have to think twice. This realization came from the compassion and sensitivity of the hands that pushed me in the wheelchair. The helping hand to get in and out, the sincere apologies when going over bumps, the uncomplaining warmth of the labor… made me realize that the world, despite its vastness, can be an easier and manageable place when we are surrounded by goodness and compassion. So if I have to be in a wheelchair one day, I will surrender to the warmth of the heart next to me for I remember 1 Corinthians:

If I speak in the tongues of men or of angels, but do not have love, I am only a resounding gong or a clanging cymbal. If I have the gift of prophecy and can fathom all mysteries and all knowledge, and if I have a faith that can move mountains, but do not have love, I am nothing. If I give all I possess to the poor and give over my body to hardship that I may boast,but do not have love, I gain nothing.

Love is patient, love is kind. It does not envy, it does not boast, it is not proud. It does not dishonor others, it is not self-seeking, it is not easily angered, it keeps no record of wrongs. Love does not delight in evil but rejoices with the truth. It always protects, always trusts, always hopes, always perseveres.

Love never fails. But where there are prophecies, they will cease; where there are tongues, they will be stilled; where there is knowledge, it will pass away. For we know in part and we prophesy in part, but when completeness comes, what is in part disappears. When I was a child, I talked like a child, I thought like a child, I reasoned like a child. When I became a man, I put the ways of childhood behind me. For now we see only a reflection as in a mirror; then we shall see face to face. Now I know in part; then I shall know fully, even as I am fully known.

And now these three remain: faith, hope and love. But the greatest of these is love.




Tuesday, July 12, 2011

Light at the end of the Tunnel?

Maybe there is or maybe one should learn to enjoy the darkness. I am, and I am learning to revel in it. Good things come to those who wait, apparently, and love finds YOU… well, I don’t know about that, but I do know that accepting and surrendering help me a lot. It’s difficult to accept, and it’s even more so to surrender. I’m a quiet rebel, so I try to trample whatever that attempts to damn me… like MS… I swim, I do my physical therapy exercises, I do my speech therapy exercises (ALMOST!!), I cook, I sing, I write, I read… the list is endless, but deep inside, I’m also trying not to let out this massive fear that looms within. I will squash it, I will trample it, I will beat it… maybe in an in an ideal world. That’s not my world, for sure.  

But today was an exceptionally good day. In the morning I went to OSF by bus to sort out my insurance issues and show the PROUD letter that undertakes to pay my OSF bills in full! Kelly at the reception was very sweet. I was embarrassed when she said “HI LASAAAAAAANTHA,” because I didn’t know her name then. I do now.

Then I went to the English department and chatted with Jan and Irene. I also ate some yummy treats and drank iced green tea while I was there. It was murderously hot today, and I almost collapsed when I was on the way to the store, but I made it and bought fish, shrimp, bananas, strawberries, carrots, cranberries, etc. When I came home, I crashed. I REALLY CRASHED. The backpack was heavy and the day was way too hotttttt!! And then I woke up…

I was invited by pastor Knapp to see Romeo and Juliet AND The Winter’s Tale this weekend. I’m thrilled to pieces! They have been able to get complimentary tickets for me. I’m just completely amazed by the goodness around me. Amazing… I somehow feel like I’m getting somewhere. I managed to find a much cheaper apartment, I managed to sell most of the things I wanted to sell to make ends meet, and I met some wonderful people.

Today, this Indian couple came to buy my keyboard. They were amazingly shy and sweet, I wish I could give away the keyboard without charging… alas, I need the money, though, so I brought down the price and told them they could take anything they wanted from my kitchen for free: the toaster, spoons, containers, etc. They were in a hurry, though, and they didn’t want to take anything L

I cooked shrimp today since I can eat sea food now. It was really good, if I may say so myself! I feel, despite the physical challenges, I had a great day. I feel that someone’s watching over me. I feel I can do anything. Keep me in your care, my Father in heaven.